47 / A Life With Cystic Fibrosis
by Simon Wiffen
47 / A Life With Cystic Fibrosis is a book of beautiful, intimate portraits exploring the reality of living with cystic fibrosis. Each subject offers an insight into their attitudes to life and their condition up to and beyond the median predicted survival rate of 47.
- A4 Paperback
- 108 pages
- PUR bound
- High quality 170gsm internal pages printed with 4 colour digital process
- Heavyweight 300gsm matt laminate outer cover printed with 4 colour digital process
- Publisher: Independent Publishing Network
- Publication date: 2018
- 47 / A Life With Cystic Fibrosis
- ISBN: 978-1-78926-768-6
Copyright © 2018 by Simon Wiffen
All rights reserved. No part of this publication may be reproduced or used in any form without the prior permission of the author.
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Note: I’ll aim to post your book out within a few days of your order. UK orders should be delivered within 3 working days of shipping. European orders should be delivered in 5-7 within working days of shipping. Estimated delivery times for Economy International orders are within eight weeks. Standard International orders should be delivered in 5-7 days.
Photographer Simon Wiffen presents 47 / A Life With Cystic Fibrosis – a series of stunning portraits exploring the realities of living with cystic fibrosis and attitudes to life and the condition up to and beyond the median predicted survival rate of 47.
“Simon’s intimate portraits give a unique insight into the lives of some of the 10,400 people in the UK living with cystic fibrosis (CF). This book beautifully captures multiple voices and reveals the reality of living with a condition that shortens life. Although there is no cure for CF, advances in research are helping people to live longer. However, as these stories attest, CF remains a daily challenge.”
– Anne Shinkwin, Director of Fundraising at The Cystic Fibrosis Trust.
Cystic fibrosis (CF) affects more than 10,400 people in the UK, but the daily challenges faced by those with the condition remain relatively unknown. 47 / A Life With Cystic Fibrosis is a new photography book which aims to change that. It’s a genetic life-limiting condition that affects the lungs, digestive system and other organs and can cause chronic infections and reduced lung function. There’s currently no cure. While CF is unforgiving, relentless and unbelievably cruel, the subjects of these portraits show strength, resilience, defiance and an appreciation of life that many of us can only ever hope to find.
For every book sold, £5 is donated to the Cystic Fibrosis Trust to support the incredible work they do every day to support those affected by CF and to help work towards a cure.
This book follows a hugely successful Kickstarter campaign that smashed it’s target in just 8 hours. In December 2018 I was invited onto BBC1 Yorkshire to talk about the book project on Look North. Read more about this project in the projects section of this site.
I’d love to hear your thoughts on the book. If you’ve purchased a copy I’d really appreciate it if you could leave a review below. It’s amazing to see copies of the book out in the wild so feel free to tag me in your pictures (@SimonWiffen on Twitter and Instagram) and use the hashtag #47ALifeWithCysticFibrosis.
Simon Wiffen is a Leeds-based photographer, husband, record collector and a dad of three. His youngest, Ellis, is 2 and was diagnosed with cystic fibrosis at 3 weeks old. Visit the press kit page for contact details, review copies, photos and an author bio.
Recommended on every level.
What can I say? I’ll have a quick flick of this magical looking book, I thought, then get back to it later when I have a little more time. That was an hour ago. I have looked at every photo (they are beautiful, truly beautiful) read through every extract and all the other pieces in between. I’ve cried real tears and I’ve smiled, too. This is a work of art – an insight into a world few of us who have no contact with CF understand – and it’s aesthetically gorgeous, too. I recommend it on every level.
A powerful and emotional book
Such a great idea to raise awareness of this horrible genetic condition. To see how differently people are affected by CF in one book is so important, especially as people with CF aren’t allowed to meet in person. Simon is also a great photographer which shows through on these fabulous portraits.