Available now – 47 / A Life With Cystic Fibrosis: New photography book explores the reality of living with cystic fibrosis.
Cystic fibrosis (CF) affects more than 10,400 people in the UK, but the daily challenges faced by those with the condition remain relatively unknown. 47 / A Life With Cystic Fibrosis is a new photography book which aims to change that.
People with cystic fibrosis experience a build-up of thick sticky mucus in the lungs, digestive system and other organs, causing a wide range of challenging symptoms affecting the entire body. It’s a life-limiting condition and the median predicted survival rate is just 47 years old. There’s currently no cure.
The book presents a series of stunning portraits exploring the realities of living with CF and each subject’s attitude to life and their condition up to and beyond the age of 47. People with CF struggle with a wide range of symptoms from persistent coughing, chronic lung infections and CF-related diabetes to isolation due to risk of cross infection and double lung transplants. An average day contains a complex mix of medications and physiotherapy and lengthy hospital stays are commonplace.
“With this book I’ve tried to capture these personalities and my hope is that as a collective body of work, it gives an insight into the reality of living with this condition. As a dad of a 2 year old who was diagnosed with CF at 3 weeks, this project is something I’m incredibly passionate about. What I’ve learned is that while CF is unforgiving, relentless and unbelievably cruel it also creates strength, resilience, defiance and an appreciation of life that many of us can only ever hope to find.”
– Simon Wiffen
“Simon’s intimate portraits give a unique insight into the lives of some of the 10,400 people in the UK living with cystic fibrosis (CF). This book beautifully captures multiple voices and reveals the reality of living with a condition that shortens life. Although there is no cure for CF, advances in research are helping people to live longer. However, as these stories attest, CF remains a daily challenge.”
– Anne Shinkwin, Director of Fundraising at The Cystic Fibrosis Trust
The book features portraits of 47 people from across the UK, ranging in age from 4 to 61 years old as well as an ‘In memory’ section which remembers a tiny fraction of the many people who die each year as a result of CF. One of the subjects in the book sadly passed away just weeks after having his picture taken and before the book was published.
The book is available to purchase for £20, with £5 of the sale price being donated to the Cystic Fibrosis Trust to support the work they do every day to support those affected by CF and to help work towards a cure.
To read reviews and purchase a copy of the book please visit – https://www.simonwiffenphotography.co.uk/47-a-life-with-cystic-fibrosis/
The Kickstarter campaign for my upcoming book ’47 / A Life With Cystic Fibrosis’ has now ended and I’ve been absolutely blown away by the response. A huge thank you to everyone who helped to make this happen.
If you’re a backer you’ll receive an email in the next couple of weeks asking for a bit more information so I can fulfil your pledge. If you didn’t pledge there will be an opportunity to get your hands on a copy of the book – I’ll announce details of that in the coming weeks.
You can read more about the ’47 / A Life With Cystic Fibrosis’ book project or you can check out the Kickstarter page to see more about how the target was met (and see regular updates).
I can’t wait to share this with you. Thank you again to everyone for their support.
I love to shoot all kinds of photography given the opportunity. Since I was a kid, back in my bedroom darkroom I’ve always been fascinated by the concept of capturing a moment in time in a fraction of a second. Since becoming a parent I’ve found my main inspiration to shoot has been to try and capture those moments that pass so quickly as well as I can.
Life moves pretty fast. If you don’t stop and look around once in a while, you could miss it.
– Ferris Beuller
I have a particular love for photos that can be seen as timeless – I love black and white. I love candid, natural shots that capture personality and specific moments that can so easily be forgotten as days, months, years fly by in the blink of an eye and your children are suddenly young adults.
A good case in point was a family camping trip last week. It’s very rare for us all to get together (we live at opposite ends of the country and in some cases in a different country altogether). We have young children who don’t often see each other so it was a fantastic opportunity to let them get to play together. As a photographer it’s hard to let these occasions happen without trying to document it as best I can. As always, it’s a challenge to achieve that, whilst remaining present but I try my best.
So that’s my main photographic inspiration – to document and capture life and family as it grows and develops and to remember these moments because they don’t last long but are so precious.
What’s your photographic inspiration? Let me know in the comments or on Twitter – @SimonWiffen