47 / A Life With Cystic Fibrosis
by Simon Wiffen
47 / A Life With Cystic Fibrosis is a book of beautiful, intimate portraits exploring the reality of living with cystic fibrosis. Each subject offers an insight into their attitudes to life and their condition up to and beyond the median predicted survival rate of 47.
- A4 Paperback
- 108 pages
- PUR bound
- High quality 170gsm internal pages printed with 4 colour digital process
- Heavyweight 300gsm matt laminate outer cover printed with 4 colour digital process
- Publisher: Independent Publishing Network
- Publication date: 2018
- 47 / A Life With Cystic Fibrosis
- ISBN: 978-1-78926-768-6
Copyright © 2018 by Simon Wiffen
All rights reserved. No part of this publication may be reproduced or used in any form without the prior permission of the author.
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Photographer Simon Wiffen presents 47 / A Life With Cystic Fibrosis – a series of stunning portraits exploring the realities of living with cystic fibrosis and attitudes to life and the condition up to and beyond the median predicted survival rate of 47.
“Simon’s intimate portraits give a unique insight into the lives of some of the 10,400 people in the UK living with cystic fibrosis (CF). This book beautifully captures multiple voices and reveals the reality of living with a condition that shortens life. Although there is no cure for CF, advances in research are helping people to live longer. However, as these stories attest, CF remains a daily challenge.”
– Anne Shinkwin, Director of Fundraising at The Cystic Fibrosis Trust.
Cystic fibrosis (CF) affects more than 10,400 people in the UK, but the daily challenges faced by those with the condition remain relatively unknown. 47 / A Life With Cystic Fibrosis is a new photography book which aims to change that. It’s a genetic life-limiting condition that affects the lungs, digestive system and other organs and can cause chronic infections and reduced lung function. There’s currently no cure. While CF is unforgiving, relentless and unbelievably cruel, the subjects of these portraits show strength, resilience, defiance and an appreciation of life that many of us can only ever hope to find.
For every book sold, £5 is donated to the Cystic Fibrosis Trust to support the incredible work they do every day to support those affected by CF and to help work towards a cure.
This book follows a hugely successful Kickstarter campaign that smashed it’s target in just 8 hours. In December 2018 I was invited onto BBC1 Yorkshire to talk about the book project on Look North. Read more about this project in the projects section of this site.
I’d love to hear your thoughts on the book. If you’ve purchased a copy I’d really appreciate it if you could leave a review below. It’s amazing to see copies of the book out in the wild so feel free to tag me in your pictures (@SimonWiffen on Twitter and Instagram) and use the hashtag #47ALifeWithCysticFibrosis.
Simon Wiffen is a Leeds-based photographer, husband, record collector and a dad of three. His youngest, Ellis, is 2 and was diagnosed with cystic fibrosis at 3 weeks old. Visit the press kit page for contact details, review copies, photos and an author bio.
As someone who has CF and had a brother who suffered with CF, and then passed away at 30 from waiting for a lung transplant, I found this book illuminating and identifiable; each struggle with life is unique, and struggling with life AND CF is it’s own war altogether, filled with these battles we must overcome. The people in this book are those people. Simon Wiffen is an artist, encapsulating the images of people that have the scars of war etched into their eyes and skin, an invisible illness that leaves visible scars and effects. My brother Tyler Jones has been so kindly added by Simon in the “Memories” section, (30, West Midlands, near bottom of page, me-left, Jay-right, Ty-middle). Thank you Simon for that, and thank you for all the amazing work you’ve done and thank you for sticking with your family through your fight looking after a child with CF. As we were growing up so many families were literally breaking apart because their children/child was diagnosed with Cystic Fibrosis. So anyone who keeps a family together through that development is a hero. To Simon, keep on illuminating as we tread through the darkness.
This book is amazing! Its a good way to show others how CF affects each of the people with it, and how different it can be. Loved reading each of the stories within the book. Well done for making it happen and coming up with this project and letting me to be part of it.
The simple reality of life with CF
I have CF and one of the most frustrating things about living with the condition is that it is really difficult to explain how it affects you. Subsequently, it feels like there is little awareness and understanding of how difficult living with CF can be. In the 40 years I have been alive, there are are only a handful of awareness raising campaigns that I feel have accurately painted a picture of life with this devastating condition. Simon’s book really comes out top of that list. The book is immensely powerful, in that it not only denotes the efforts, fear, optimism and challenges of living with CF, but also the normality and the mundane. The accounts from the children will have you laughing out loud. The adults’ stories bring home the unique strength and determination that pwcf have. Simon has achieved something incredibly special within this book – the simple reality of CF. There is no dressing up or down of the issues. CF is just told as it is. It’s an absolute masterpiece!
Outstanding piece of work
I think like a lot of people, CF is a condition i knew absolutely nothing about, and this is an amazing medium for bringing awareness to it. Not only is it a stunning book of powerful, beautiful photography – but it offers you a glimpse into the varied lives of people living with CF and how it affects them. Congratulations Simon, its an incredible piece of work.
Fabulous book, couldn’t wait to get my hands on it. Fantastic cover photo, all excellent and very professional. It’s lovely to see some of the people in the book that I have grown to love and admire, and some that are no longer with us. The very challenging times in the life of every Cf person is taken in their stride, very courageous and extremely brave in all they do. I am in awe of all of them. 💖