I’ve been absolutely blown away by the response to this project. The Kickstarter campaign has now ended and achieved over 250% of the target. A huge thank you to everyone who’s supported the campaign.
47 / A Life with Cystic Fibrosis is a series of intimate portraits of people living with CF and offers an insight into their attitudes to life and their condition up to and beyond the median predicted survival rate of 47.
Each portrait is shot in the same style, with the same lighting and presented in black and white. Alongside each portrait is a short extract from our conversation during the shoot that offers an insight into the individual in the photograph.
The choice to shoot all portraits in a consistent style is to remove distractions and focus on the individuals and their unique experience of living with CF.
I’ve spent over 8 months travelling around the UK visiting people living with CF, getting to know them and shooting their portraits and this book is the culmination of that experience. My hope is that this body of work will raise awareness not just of Cystic Fibrosis as a condition, but the real-life impact CF has on everyday life.
As a dad of a 2 year old who was diagnosed with CF at 3 weeks, this project is something I’m incredibly passionate about and I think the final product is a beautiful, powerful piece of work.
I’m on target to ship the first copies of the book to backers in time for Christmas. I’ll also have copies to sell directly – I’ll announce details of how you can buy a copy in due course.
You can also follow the project on Facebook at https://www.facebook.com/ALifeWithCysticFibrosis/.
I can’t wait to share this project with you.