Available now – 47 / A Life With Cystic Fibrosis: New photography book explores the reality of living with cystic fibrosis.
Cystic fibrosis (CF) affects more than 10,400 people in the UK, but the daily challenges faced by those with the condition remain relatively unknown. 47 / A Life With Cystic Fibrosis is a new photography book which aims to change that.
People with cystic fibrosis experience a build-up of thick sticky mucus in the lungs, digestive system and other organs, causing a wide range of challenging symptoms affecting the entire body. It’s a life-limiting condition and the median predicted survival rate is just 47 years old. There’s currently no cure.
The book presents a series of stunning portraits exploring the realities of living with CF and each subject’s attitude to life and their condition up to and beyond the age of 47. People with CF struggle with a wide range of symptoms from persistent coughing, chronic lung infections and CF-related diabetes to isolation due to risk of cross infection and double lung transplants. An average day contains a complex mix of medications and physiotherapy and lengthy hospital stays are commonplace.
“With this book I’ve tried to capture these personalities and my hope is that as a collective body of work, it gives an insight into the reality of living with this condition. As a dad of a 2 year old who was diagnosed with CF at 3 weeks, this project is something I’m incredibly passionate about. What I’ve learned is that while CF is unforgiving, relentless and unbelievably cruel it also creates strength, resilience, defiance and an appreciation of life that many of us can only ever hope to find.”
– Simon Wiffen
“Simon’s intimate portraits give a unique insight into the lives of some of the 10,400 people in the UK living with cystic fibrosis (CF). This book beautifully captures multiple voices and reveals the reality of living with a condition that shortens life. Although there is no cure for CF, advances in research are helping people to live longer. However, as these stories attest, CF remains a daily challenge.”
– Anne Shinkwin, Director of Fundraising at The Cystic Fibrosis Trust
The book features portraits of 47 people from across the UK, ranging in age from 4 to 61 years old as well as an ‘In memory’ section which remembers a tiny fraction of the many people who die each year as a result of CF. One of the subjects in the book sadly passed away just weeks after having his picture taken and before the book was published.
The book is available to purchase for £20, with £5 of the sale price being donated to the Cystic Fibrosis Trust to support the work they do every day to support those affected by CF and to help work towards a cure.
To read reviews and purchase a copy of the book please visit – https://www.simonwiffenphotography.co.uk/47-a-life-with-cystic-fibrosis/
The Kickstarter campaign for my upcoming book ’47 / A Life With Cystic Fibrosis’ has now ended and I’ve been absolutely blown away by the response. A huge thank you to everyone who helped to make this happen.
If you’re a backer you’ll receive an email in the next couple of weeks asking for a bit more information so I can fulfil your pledge. If you didn’t pledge there will be an opportunity to get your hands on a copy of the book – I’ll announce details of that in the coming weeks.
You can read more about the ’47 / A Life With Cystic Fibrosis’ book project or you can check out the Kickstarter page to see more about how the target was met (and see regular updates).
I can’t wait to share this with you. Thank you again to everyone for their support.
Kickstarter page is now live. Pre-order the book now!
For the last 8 months I’ve been working on a personal photography project called ’47 / A Life With Cystic Fibrosis’ – a series of intimate portraits of people living with CF and offers an insight into their attitudes to life and their condition up to and beyond the median predicted survival rate of 47.
I’m hugely excited to announce that the Kickstarter campaign for the book is now live and as a backer you can pre-order an advance copy of the book as of today!
Each portrait is shot in the same style, with the same lighting and presented in black and white. Alongside each portrait is a short extract from our conversation during the shoot that offers an insight into the individual in the photograph.
The choice to shoot all portraits in a consistent style is to remove distractions and focus on the individuals and their unique experience of living with CF.
I’ve spent over 8 months travelling around the UK visiting people living with CF, getting to know them and shooting their portraits and this book is the culmination of that experience. My hope is that this body of work will raise awareness not just of Cystic Fibrosis as a condition, but the real-life impact CF has on everyday life.
As a dad of a 2 year old who was diagnosed with CF at 3 weeks, this project is something I’m incredibly passionate about and I think the final product is a beautiful, powerful piece of work but I need your help to get the final book to print. I’ve just launched a Kickstarter campaign to fund the first run of the book and I’ve set up various rewards for those of you that pledge so there’s plenty of ways for you to help, even if you can only afford to donate a few pounds.
After this campaign I’m going to be donating £5 to the Cystic Fibrosis Trust for every book sold to support the incredible work they do both in terms of medical research but also offering support not just to CF patients but to their friends, families and colleagues. We’ve experienced first hand just how important their work is and it’s a cause very close to my heart.
How to back this project
Visit the Kickstarter page to find out more about the various ways you can support this project and help me get it to print:
You can also follow the project on Facebook at https://www.facebook.com/ALifeWithCysticFibrosis/.
If you can help me reach my goal please give what you can. I can’t wait to share this project with you.