As well as chatting on the sofa they also filmed a short VT of my wife and I at home with our son Ellis, highlighting some of the day to day routine treatments that living with CF requires.
I was delighted to be able to invite Matilda along to join me in the studio. Tilly is 9 and is one of the 47 subjects in the book. She’s incredibly mature and eloquent for her age. She watches Look North every night and was a little starstruck but they looked after us brilliantly, giving us a guided tour of the control room, editing suites and radio studios amongst other things. I think the highlight for Tilly was hanging out in the make-up room with Harry and Keeley beforehand and having her make-up done. I was less excited to have my make-up added but hey, studio lights and shiny heads aren’t the best combo.
The highlight for me was seeing a selection of the portraits up on the big screen during the intro to the segment, they looked great up there. Another highlight was being sent this adorable picture of Ellis watching the segment at home.
The interview itself all went by in a bit of a blur in all honesty. Having been unable to speak without breaking into coughing fits in the last few days it was a relief to get through it at all. Overall though, I’m incredibly thankful to be given a good chunk of time to focus on the subject of CF to a good-sized audience. The entire purpose of producing this piece of work was to raise awareness of CF and the impact it has on everyday life so it was a fantastic opportunity to do that.
A huge thanks to Olivia, Harry and Keeley for giving us a platform to talk about CF, to Heather and Ellis and of course to Matilda who did a fantastic job of looking after me. She really is a superstar. Who can blame Harry for being a little smitten.
What a pleasure to have you guys on the programme
But Simon Matilda was my favourite
— Harry Gration (@harrylooknorth) December 17, 2018
You can watch our segment here: