I’m in today’s edition of the Daily Express newspaper here in the UK, talking about my book project.
The Daily Express came to visit us the other week to talk to me about my book 47 / A Life With Cystic Fibrosis, our lives as parents to a young boy with CF and the ongoing campaign for access to specialist CF medication here in the UK.
If you’re not able to pick up a copy today you can read the article online.
As a dad of a 2 year old who was diagnosed with CF at 3 weeks, I’m incredibly proud of this piece of work. It represents a year of my life and a journey that I, like the people in this book, never expected to find myself on. What I’ve learned is that while CF is unforgiving, relentless and unbelievably cruel it also creates strength, resilience, defiance and an appreciation of life that many of us can only ever hope to find.
For every book sold, £5 is donated to the Cystic Fibrosis Trust to support the incredible work they do every day to support those affected by CF and to help work towards a cure.
